According to SWNS, a UK woman referred to herself as a real-life ‘Sleeping Beauty’ because of the unique condition that makes her sleep up to 22 hours per day. Joanna Cox, aged 38, explained.
Once she falls asleep she cannot be awakened and often wakes up disoriented and unaware of the time or day. She expressed that the condition is significantly affecting her life and likened herself to the character from the fairy tale.
What is The Condition Suffered By Joanna Cox
The Castleford resident has idiopathic hypersomnia, a rare sleep disease that causes the person to feel abnormally sleepy throughout the daytime even after getting a decent night’s sleep, according to the Mayo Clinic. People with this disorder have trouble waking up after sleeping, and naps do not leave them feeling refreshed; as a result, they frequently wake up confused and disoriented.
Cox, who has this illness, claimed that despite getting 18 to 22 hours of sleep every day, she never feels rested. She vented her annoyance at others who call her “lazy” or tell her to set additional alarms.
The British woman who can hibernate initially realized something was wrong in 2017 when she started to have almost constant exhaustion and needed to take naps throughout the day in order to function.
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She was running a cleaning business at the time, so the sudden exhaustion was uncalled for. Later, Cox saw that she was falling asleep in unexpected places, even while driving, which prompted her to give up driving completely. She described an unpleasant event from a night out where she fell asleep in a club booth and was ejected by a bouncer who thought she was intoxicated.
Diagnosis Of Joanna’s Rare Disorder
Joanna Cox sought medical help to determine the source of her weariness, but the doctor originally gave her the wrong diagnosis of depression. Medical experts ruled it out, though, because she did not display any more symptoms. This resulted in a protracted process of seeing numerous doctors, all of whom gave her incorrect diagnoses for a variety of conditions, including infections and cancer.
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In October 2021, Cox was finally referred to a sleep clinic at Pontefract Hospital in Yorkshire after years of battling her issue. There, physicians determined that she had idiopathic hypersomnia. Regrettably, there is now no treatment for this illness, and its origin is still unclear. Cox has tried a number of treatments, but none have been successful in helping her problems.
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In October 2021, Cox was finally referred to a sleep clinic at Pontefract Hospital in Yorkshire after years of battling her issue. There, physicians determined that she had idiopathic hypersomnia. Regrettably, there is now no treatment for this illness, and its origin is still unclear. Cox has tried a number of treatments, but none have been successful in helping her problems.
Repercussions Of Joanna’s Hypersomnia
Cox was forced to leave her job in 2019 because she couldn’t remain awake. Due to her constant weariness, she also frequently misses flights, including one that she had planned with her two daughters, Isabelle, who is 18, and Caitlin, who is 20, for a trip to Spain. Cox claims that because of her condition, she is unable to plan ahead since she is unsure of her ability to stay awake.
Cox’s hypersomnia has serious repercussions in addition to being a great irritation. She remembered, for instance, a period when she had gone four days without eating and was still hospitalized because of low blood sugar. As straining to stay aware causes “vivid hallucinations,” it creates a vicious loop.
Cox recalls one of her most terrifying moments as “hundreds of spiders” crawling all over her bed. Strangely, Cox is only awake in the early morning, at around two in the morning, when she walks her two cockapoos, Autumn and Bobby. Cox, who lives alone, claimed that she wouldn’t be able to control her nap apocalypse without the help of her daughters.
When Joanna Cox was at her worst, her daughter Isabelle had to wake her up and assist her with daily activities like eating and using the restroom. She also claimed that because her disease is so uncommon, previous providers were unable to give her the required care. She can take care of her feeding and personal hygiene needs, according to Cox, but getting out of bed is the hardest for her.
Joanna Misses A Normal Life Style
According to Cox, her hypersomnia has made it impossible for her to have a romantic relationship, and she has been single for the past seven years. She said that she doesn’t even think about the possibility of having a partner because of her condition.
Cox hopes that by sharing her story, she can connect with other people who have the same condition and find a doctor who can help her return to a normal life.
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